However, when we ask ‘what is the best health information available on the Internet?’, we may not be posing the question we think we are.
What we are actually asking is: ‘what health information are we most likely to find on the Internet?’
This is a regrettable state of affairs, but one that needs to be acknowledged.
It is also one that needs to be rectified.
Today, I am launching the ‘I have’ project.
I’m not developing it, though.
What are the ‘I have’ project’s goals?
- To offer definitive answers to the question ‘I have [disease state]. What should I do?’
- To produce 1 page signpost summaries of the most reliable, relevant, patient-focused, outcomes-oriented, evidence-informed health information available for a wide range of diseases.
- To publish outputs compiled with SEO best practice in mind to be promoted through social networks and communities in an effective way with the intention that they should appear above the fold on the first page of Google results for the disease they address. Even the best health information is useless if it isn’t discoverable.
- To harness the expertise of healthcare professionals, patients and curators in co-creating and sharing the very best health information available for the disease states addressed by each document concerning treating and/or managing of the disease, living with the disease, and learning about the disease.
What is happening first?
- The ‘I have’ project’s proof of concept output will be I have breast cancer. This project is now live for any contributor to add to. The ‘I have’ project maintains an open editorial policy which asks that contributors add their own additions, but leave comments querying the validity, accuracy or relevance of others’ additions rather than modifying or deleting them themselves.
What will happen next?
- If the ‘I have’ project progresses beyond the proof of concept stage, clusters of publications will be released by disease classification on a monthly basis.
- New projects will be added to the ‘I have’ project publication directory and plan. This open document is now live, and ready to accept your suggestions under the ‘Proposed projects’ tab at the bottom of the spreadsheet.