It’s what we do.
The indirect promotion of our activities through the amplifying effect peer approval confers is usually both welcome, and appreciated.
It’s now also something we may need to think about twice about before we do it.
This morning I’ve been wondering whether Alex Butler, the architect of Janssen’s new Psoriasis 360 Facebook page (also on Twitter and YouTube, according to the twitback, but I can’t see it yet), hasn’t actually been grinding his teeth whilst penning many gracious replies to messages of support from healthcare social media commentators and enthusiasts.
Because every comment that Psoriasis360 garners from those who do not have psoriasis may dissuade those that do have psoriasis from participating.
I completely understand why Alexandra Benbo (comment, 8 October 2010), whom I’m inferring from her comment may have, or have had, or been in some way affected by psoriasis in others, was bemused by what she encoutered on visiting the page for the first time:
Imagining myself seeing Psoriasis360 through her eyes, I would have been rocked back on visiting a page focusing on psoriasis and not unreasonanly expecting to see comments from other people with psoriasis, only to be treated to a ticker-tape parade of grandstanding comments-about-commenting from social health freaks and geeks.* I’d have turned tail, and headed for the hills, never to return.
More recent commentators such as Siobhan Rossi (comment, 11 October) don’t seem to have been quite as phased by this, but nevertheless, Alexandra’s point is taken.
In Alexandra’s words, whilst I am very much ‘for’ it, ‘this community isn’t for [me]’.
This has made me reflect on the fact that in wishing to express our support for our healthcare social media communities, we may be stymieing their aim of supporting patient communities, the very thing that we are so keen to promote.
As first commenter*, I’m right at the front of the line for the #headslap and will in the future consdiering moderating my own desire to comment. That includes quashing the desire to post a link to this post on Psoriasis 360.😉
Will you be doing the same?